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September 2007

September 30, 2007

Touched By An Angel

Leukemia_2 I promised a Post after the Sale. Evan is fevering. From the feel of his head through the night, I would guess that we have a few more days here at home. I, therefore type this Post today in the heightened alert and state of constant readiness that is my norm. Evan's fever and fatigue has a slap-stick hilarity to it, that only hours supine, on a pillow, can create. He tells me, but only because I relentlessly delve, that "I am so tired, I feel like I have never slept in my whole life."

I promised a Post after the Sale. I imagined that Mom's Musings would fall somewhere along the lines of a Post Sale reporting on the vast turnout and the $0.63 a young child gave to Evan and the piles of dollars raised in support of my young, fatigued and fevering son. Sept_202007_003_8I hoped that somewhere within the recesses of my mind's attic that I could rummage long and hard enough to find just the words of thanks and gratitude that surround and envelope my fevering, fatigued and funny child with Leukemia.

7970078_3587744 I hoped all evening last night and very early this morning,  backdropped against the hope that his fever would break and the larger,ever looming and luminous Hope for his healing, that I would find some new and clever and sensitive way to convey the perfect gift of thanks. But alas, I was not to have worried, for yet again, the job was done for me, while I cared for my fevering, fatigued, funny son.

The Rummage Sale For Evan was touched by an angel. She came as a family, as a Scout, as a school mate, as a friend, and as a Sept_202007_034_3lone parent- who stopped by in the predawn hours, because she "...just had to do something". She came as a former transplant patient, a cancer survivor, as a mother of six-one who has survived ALL. She came as a teacher, a parishoner, as a widow, as a grandparent, and as a church chior member on the way to a perfoemance. The Rummage For Evan was touched by many angels and they came as strangers, but left as friends.

I promised a Post, after the Sale,  but I did not promise it would be about Evan. Today's post is perhaps a bit because of Evan, but it is about much more than Evan. Because of Evan, we have come together for a time and for a friend and for a Sale.  Because of Evan we have  seemingly crossed  paths, faiths, timezones, datelines and continents. Your efforts to help one little boy with Leukemia, because you 'had to do something', has had far reaching effect, success and it's momentum is one that can be felt in many regions. It is just one heartfelt example of the six degrees of seperation and the power of a community that cares.

To the husband who bought bag after full bag of clothing for the families in the Phillipines...thank you. To the Mom who bought a truckload of "new" furniture for her struggling family, may your days and hearts be lighter and more comfortable. To the Santa Clarita Methodist Church...thank you for opening your doors and  your hearts to us. To the Korean Ministry...thank you for your presence and your support and for your purchases. To the Friends of the Valencia Library...enjoy the books and pass them along, as only you can do with such success.

To the Single Mother's Outreach...there would have been more...the car was full to the brim, with bag after bag full of clean and fashionable clothing. To the teen who refused to accept the change for his $20...you are right..."A Warrior Always Wins". To the Scout who almost missed his Pack meeting so that he could donate and meet Evan- thank you,young man, for your generosity.

To the man with the trailer, thank you for renting it way too early and going way ,way out of your way for days, for the environment, for your family and your wife and for Evan.  I am ever aware of the times you take to share and to care. To the kids who carted and carried and cried not at all, thank you, thank you, thank you. You could have had your choice of toys and yet you didn't. Thank you.  Thank you to the kids and parents who juggled sporting games, sales and sleep. We thank you for "leaving it all on the field" in Evan's honor. Yet another success!

To the Playrooms of CHLA, we have many clean books and games and puzzles to share. The children who are long term patients and the repeat visitors will notice the new infusion of toys. Thank you for being there for our children. To the widow and her Mom and the kidney transplant patient...your loss is in no way diminished-it all hurts- deep where we don't like to go.  Thank you for sharing your stories with Evan.

And finally, thank you to the angels...those of you who slipped in quietly and constantly and with hardly a word. We saw you and we heard you and we are touched by you...all of you. Your efforts, your generosity and your caring and compassion are commmendable, stellar and as far reaching as the sun. There is no limit to what we can do.

With thanks,

Kimberly 

September 29, 2007

A Dream Come True

We thought that with Evan's ANC in the 2.5 range, an evening out on the town was in order. I am not sure who wanted an evening among friends more...Evan or Mom. Ryan, well, Ryan just came along for the ride, lit up the night and it was such a joy to see him shine! Sept_202007_039Actually, we didn't see him much as he was all over town picking up your many donations for the Rummage Sale.

Once we pulled into the Church where the Warrior Women were accepting your many kind donations and well wishes, there was no holding Evan back!  Sept_202007_043_10 He smelled the pizza, saw his friends and we hastily covered his face and hands Sept_202007_031_2and he ran inside to judge a freefall competition, boys vs girls, all taking turns, plowing head first, into a Love Sak.  To the lucky person who snatched up that Sak at the tremendously successful Sale today, it has many uses! We have seen it pad stairs, heads and animals alike.

Evan and I spent the next delightful hour talking to friends, new and old. Sept_202007_040_4We had such fun! Thanks to all  the many wonderful and kind individuals who donated goods for the Sale and  thanks to all the shoppers who turned out- bright and early- to support Evan the Warrior! Your kindness is overwhelming!Sept_202007_035_3

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Evan returned home, "...so tired, Mom, it is funny." When asked if he enjoyed seeing everyone, he replied...

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  "It was a dream come true!"

                                                              

Continue reading "A Dream Come True" »

September 22, 2007

RUMMAGE AND GOODWILL FOR EVAN

Leukemia

 

Rummage SALE for Evan the Warrior!!!
Dear Pack 2, Highlands Families, Santa Clarita Valley Residents, Near and Far Supporters:
Have you been organizing your home recently? Do you need to take some things to Goodwill? Do you need just that certain bric-a-brac, sporting good, clothing or toy? How about a head start on holiday shopping?  How about using all your "goodwill" to benefit our dear Evan Hutchison?
On Saturday, September 29 from 5:30 AM until  12 noon, Evan's Warrior Women will be holding a Rummage for Evan Sale at the Santa Clarita United Methodist Church.  The address is 26640 Bouquet Canyon in Saugus right across from Presidente, at the corner of Espuella/Bouquet.  Your items can be dropped off the day before from 4-8 PM at the Church Fellowship Hall.  There will be signs pointing you in the right direction.
Any questions?  Contact evanthewarrior@sbcglobal.net.    Come join the fun, meet the Warrior Women, drink some lemonade, buy a few things and do a good turn for our little Warrior!
PS This is an INSIDE SALE!!!!!!!!!!!!!!!!!!!!!! How 'cool' is that!

September 21, 2007

How To Reach Us

Evan the Warrior can be reached at:

Evan The Warrior

c/o Kimberly Hutchison

Post Office Box 800883

Santa Clarita, CA 91380

Evan can also receive Email at: evanthewarrior@sbcglobal.net

Kimberly's email is: palmtreesandwaves@sbcglobal.net

The Warrior Women's email address is evanthewarrior@sbcglobal.net

Messages for Evan can be left on the Comment Section of any Post and also on www.carepages.com (sitename:evanthewarrior) . Evan reads his carepage messages almost every night and loves to leave messages there for you, too!

Donations are kindly accepted at any WAMU branch in California. Evan's Benevolent Account Number is: 395-173464-5.

In addition, if anyone has previously donated to Evan and, if, for any reason has not received a personal thank you from Kimberly, please do not hesitate to contact us.  We want to make sure all donations are gratefully acknowledged and are received by Kimberly. Due to the recent change over of Evan's site to his new and official web address, www.evanthewarrior.net  we do not want to miss thanking any one of you who have so generously contributed to Evan's healing.

Thank you for caring and we look forward to hearing from you!

Evan, Kimberly and the Warrior Women

September 20, 2007

New Beginnings

Typepad2 Evan has officially begun Phase Three of his treatment. This Phase is Interim Maintenance and it is designed to last 70 days. This is a Phase that marks, if I might borrow a phrase, the end of the innocence, for me, anyway. Somehow, for me, seemingly overnight, the children that once looked sicker, now look like friends we see often and Evan looks like just any another one of the  precious children that grace the halls of CHLA on an almost daily basis. I somehow have lost the feeling that Evan will, maybe, just maybe, escape the ravages of chemotherapy and not succumb to the effects and the duration of treatment. Evan might perhaps beg to differ with my assessment. Perhaps he views his illness as a gain...perhaps not. I do know that on the way upstairs very very early the night before last, after a 10 hour day of procedures, treatment and chemotherapy at  Day Hospital, Evan stopped, mid way up, hugging banister and waist and through troubled breathing stated: "I feel like every step is a two mile bike ride-uphill-on my bike. " This statement differs from the good feelings he had just the week before when he felt more like he could "...run 17 miles at one time, I feel so good". I do know that this morning when he awoke, came and sat his now somewhat bonier and lighter body on my lap, he said, "Wow. I feel like I have been hit by 15 shovels, all over my body." Then, after a breakfast of nausea and the "runs" he perked up and offered the following report: "Ok, this could be worse. I could feel like I was hit by a Mac truck or a Ford F-150. Now that would be bad!"

Phase Three is a multi-pronged, multi-agent attack within the spine and systemically that is designed to increase in stages, dosages and ominous effects...until toxicity. The plan is to inject, ingest and infuse Evan with enough chemotherapeutic agents to, desirably, reach toxicity. You read that correctly. Toxicity. Desirable.  Toxicity will thereby tell us that no stone has been left unturned. A variety of chemotherapeutic agents will be increased in incremental doses until Evan's body literally screams to stop, telling us then that the design and plan to destroy the cancer cells, and unfortunately all of the fast acting cells in his body has been accomplished. The light will go from green to red with fever, infection or counts too low to continue. This particular phase marches on regardless of the patient's ability to recover counts and once the set number of days pass, the phase is complete, regardless of the number of doses. The noteworthy side effects of this regiment is bone pain, breathing difficulties, nausea, mouth sores and 'hit by an F-150' fatigue. My plan during this phase is to manage symptoms, hold the bandages and ointment ready and shoulder what physical and emotional stress I can with support. My only wish is that the love I will shovel on him and around him will be bigger and better than any shovel of pain he will be hit with.

During Tuesday's Lumbar Puncture, while sedated and groggy, Evan talked about his Warrior status. He told the staff about the Welsh origins of his name, 'little warrior' and he offered them all an orange band, as he hoped they would all join him in his hope for a cure for Leukemia. He shared his career goal of becoming a physician. He wandered in t hazy thought to his Carepages and recited his new webpage call letters and invited all to visit. Finally, as the procedure neared the end, and he knew the needles were over, while he layed and gently held the hand of the Child Life specialist and stroked her  glistening necklace with the other, all curled up tightly in a ball, he looked up at her and she gazed into his eyes, voice deep with accent and she asked him a question. She asked, "Evan, how is it that you protect yourself, as a Warrior?" He looked up into her eyes, and said, matter of factly, "I protect myself with my heart...just my heart." Then he closed his eyes and slept.

And so it is, our new beginning.  Our new beginning in terms of treatment looks to be full of travel, and travail-physical demands outside the parameters most of us know or are comfortable with knowing about. I will press on, guiding Evan, as any Mom would through Phase three to infinity. I will muster just enough strength, after the tears are dried outside his bedroom walls, to gently awaken our little warrior, from the only respite he knows, outside of his heart that is, and take him, time and time again, joey-like and three leggedly injured soldier like and limping to the next phase and beyond, nestled in as many blankets as my car can hold for the rides, with the softest songs I can sing to calm his dreams and soothe his weary soul. I will carry dear sweet little Evan when the road is too bumpy, or pull over for a time, because I know that when he can, he will awaken, smile at me and greet me sweetly and softly and we can carry on. I know that once he is awake and I look back in the rear view mirror, he will give me a thumbs up and we will both be led by his indomitable spirit to continue this journey towards health and healing. We can safely continue whenever and wherever I get the thumbs up from Evan, for we know his spirit, and thereby mine, is guarded and gifted by his heart, against this heartless disease.

Kimberly

September 14, 2007

Under Construction

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Evan the Warrior now has an official website! The site is currently under massive construction. Plans are underway to update all of Evan's supporters on just one site...no more searching, no more difficulty contacting Mom and Evan. Everything will be here!  We have obtained an official website, www.evanthewarrior.net, and we are now accepting all email at Evan's official address of evanthewarrior@sbcglobal.net. Check here for complete updates on Evan and Family and look here for News and Events and Support by our Warrior Women-everything about Evan-everything about his treatment, his silly moods,  and the events being held for and in honor of our Warrior! Look for Posts from Carepages.com and the Warrior Women, all combined on this one site! We have heard from you and we have listened.Keep checking back. We have much to share!

Until we are fully operational, on our new and improved Warrior website, feel free to browse our special notes from Mom at www.carepages.com site name: evanthewarrior.

Also, anyone wishing to order bands or contact the Warrior Women or Mom, please feel free to write to us at evanthewarrior@sbcglobal.net. Your emails are welcome!

We plan to keep the Carepages site fully operational so that Evan can read his messages each night. In addition, Mom's posts will be here.

Special thanks to the gang at RR!...the outpouring of support in cans and in bottles (54, 47...whatever the number, word has it- turnout was enormous, and the bags were huge and full) and then there were the coins and the love and well wishes all passed along to Evan and his family! Your kindness and support is much appreciated. The Hutchison's miss you guys! Look for highlights and pictures of the now monthly event, hosted by our very own RRWW and family. We can't wait to see all of our old friends and share the pix with everyone!

This Just In: Mark your Calendars- RUMMAGE SALE,  Saturday, September 29, 2007...details in our next post! Inside...lemonade...hush...mums the word...

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