Evan The Warrior

Today, and Every Day in Between...

 

    Happy Mother's Day

           love,

evan the warrior and mom

Can You Spell C-U-R-E ?

 

Let's get these kids back in school!

Cure Childhood Cancer!

 

 

Enjoy the Ride!

 

 

Happy Grandparent's Day

Luv,

E-Man

(and Ryan and mom)

 

Labors of Love

THIS GAS IS FREE!

From the book: The Energy Bus, by John Gordon.


10 Rules For The Ride Of Your Life


1.  You're the driver of your bus.
2.   Desire, vision, and focus move your bus in the right direction.
3.   Fuel your ride with positive energy.
4.   Invite people on your bus, and share your vision for the road ahead.
5.   Don't waste energy on those who don't get on your bus.
6.   Post a sign that says NO ENERGY VAMPIRES ALLOWED on your bus.
7.   Enthusiasm attracts passengers and energizes them. 
8.   Love your passengers.
9.   Drive with purpose.
10. Have fun and enjoy the ride.

Snapshot

Raindrops On Roses

Make photo slide shows at www.OneTrueMedia.com

It's time. Christmas has come and gone. It’s time to begin again, and in earnest. There was not a moment between the opening of the gifts, before the leaving. Evan restarted Phase 4, way before he got to play and way before we had a chance to say thank you. I whisked him off to CHLA, dark and early on the day after Christmas. We've only just now had a moment to count our blessings and extend our thanks. He returns this first week of January to the Hospital… for more.

This past treatment began with infusions, two bags of blood, an LP and all the side effects in a 15 1/2 hour marathon CHLA visit. Then, home for more…a midnight delivery of the chemo he will now receive through his IV, by me, for the next few weeks.

His counts are set to fall, with a nadir at day 12. Then, a rapid rise, only to drop dangerously low again. Multiply this by 4. To top it off, for this Phase, Ryan and his “I’m fine Mom cold” has chased Evan and his lowered counts and me around the house all season. To date, we have thankfully avoided a meeting.

When it's time to give Evan his chemo, I would rather be scaling the walls of Alacratraz after a 7.5 earthquake in the cold darkness of the night, without a lifejacket, food or paddle. I gown and glove, with special thick rubber gloves and I flush and open his line and inject the drugs and then flush it all through his veins again. I am to avoid a spill at all costs.

When I finish the infusion into my son, I am to dispose of the syringe in a special toxic bin. It is interesting to me to note the procedures for the safe handling and disposal of this “poison“, especially as they are procedures designed to protect me from the very agent that is infused, by me, into my son’s veins. But, it’s time and we march on, resolute in our quest for the cure.

I got just what I asked for-for Christmas that is. What I asked for was a prayer of a cure for Leukemia and, if that wasn’t possible, then, a season to remember for all time. What I got was a son in full remission and the time to enjoy him. For that I am “what’s it all about Alfie”, like melting chocolate yummy, come read the webpage for the next month kind of thankful. With my son, and time, and his 2008 resolve to "get rid of this Leukemia", along with your continued support, the cure will come; I can just feel it.

I wish you and yours very large, heaping and heartfelt doses of health in the year 2008. It all stands and falls, on health. Take dear care of yourself and your loved ones… for, without you… without them- those whom you love well- well, you might just as well have nothing at all. It all comes down to health, doesn’t it, though?

My prayer, each and every single day, is for the parents who have lost, for the health of the many precious children who fight and for the community who surrounds and supports us.

Happy New Year!